Answers Aren’t Always Easy to Find

So today I come home from my second overnight sleep study in three weeks with more questions than answers. To say I am frustrated, confused, and even a bit defeated would all be accurate. This may seem confusing when you read why below, but I promise to make sense of it. It’s important to keep in mind that medicine is rarely simple and especially for those of us with multiple or complex medical conditions it gets increasingly complicated.

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A Crazy Few Weeks

Hello all!  It’s been a crazy few weeks with lots of stuff going on behind the scenes here at Tupeak Hope. The planning stages for becoming an official non-profit have begun and networking is well under way in order to attempt to garner support and of course funding in order to make this happen sooner rather than later.

I am committed to making this dream become a reality in order to help bridge the gaps between patients and providers as well as to become a resource through which the proper services can be connected with those that need it most and may not be aware of how to find resources in their area of need.

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A Note to Providers About Professionalism

Professionalism goes a very long way in patient relationships. Even if you don’t feel compassion, sympathy or empathy for your patients the fact that healthcare is a business and good business requires good customer service, I strongly suggest you learn how to at least fake it and fake it well. Openly doodling and blatantly leaving it for your patient to find does not instill a sense of professionalism a provider should hope for.

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Grieving Our Former Selves Never Really Stops

When dealing with the daily challenges of chronic illness one never truly escapes the grieving process. We may, given enough time after diagnosis, learn how to cope with our new lives but glimpses of the past can seep in time and again, when we least expect it. Let me share with you just one such example of how this can happen, or at least how it happened to me recently. Continue reading “Grieving Our Former Selves Never Really Stops”

“Big Name” Food Store Pharmacy Penalizes Patients

I’ve been trying to figure out how to share this for hours since it happened. I am going to try to write this so that it makes the most sense, but beg your forgiveness if it is a bit disjointed in its presentation. I thought a great deal before deciding to write this post and decided I must share it so that others who may encounter similar situations can know that they are not alone. Continue reading ““Big Name” Food Store Pharmacy Penalizes Patients”

Reflections – #AtoZ Challenge 2018

This year included a new personal challenge that I set for myself to attempt to learn to curtail my posts. I was shooting for an average post length of somewhere between 500 to 750 words per post. While this often doesn’t sound like it may be enough to adequately address a particular topic I’ve found it is far to easy for me, personally, to ramble on in an attempt to give multiple viewpoints on the topic. Continue reading “Reflections – #AtoZ Challenge 2018”

You – #AtoZChallenge2018

While I’ve spent the majority of this month writing about things from the viewpoint of both a patient and a care provider I have decided to make this post focus on you as an individual and your responsibilities to yourself both as a patient and your own primary caregiver as they should be considered on in the same for if you don’t take care of yourself, or at least try to, how can anybody else help you? Continue reading “You – #AtoZChallenge2018”

eXpectations – #AtoZChallenge2018

 

The topic for today is our eXpectations for both ourselves and others. We must always remember, whether we are healthy or not, to set reasonable expectations for ourselves and those we may interact with during the course of our lives. While it may seem easy, there can be many challenges in the way of doing so. As mentioned in earlier posts, we are often harder on ourselves and expect more of ourselves than even our worst critic could ever express. It is for this reason that we must set reasonable expectations. We must also reevaluate them often to ensure that they are still reasonable given the current circumstances in our lives. Continue reading “eXpectations – #AtoZChallenge2018”